A Year Gone By

A little over I year ago I jumped into this blogging thing with gusto, cranking out 10 or so blogs in a couple of months. It seemed to get some reads, some interest, mainly from my friends. Lot’s of indifference, of course, you’ve got to expect that, but some nice comments too. I got some Facebook likes, and then…….I stopped. Why?

Because it got terrifying. On Facebook it gets a much, much wider audience than I would have by just staying on WordPress, which was exciting at first. Then a little intoxicating as I looked at the stats – people were clicking! But then self-judgement came in and it suddenly seemed unbearably self-indulgent, boring and well, kinda embarrassing.

So I stopped.. And I must say I now have an enormous respect for those successful bloggers with thousands, tens of thousands of readers, letting it all hang out. What amazing confidence, such lack of self-consciousness – opening themselves up to the judgement and the brutality of the internet. Because with all the love they get, there’s a whole lot of nastiness thrown their way. It’s a brave person who blogs for a living.

A couple of my lovely friends have told me to get onto it again, and after a somewhat turbulent 12 months, I’ve had an urge to write. Please feel free to bugger off now, this is me time.

The Last 12 Months 

We built:

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Our very grown up house. I think it looks like a winery. Actually it could be with the amount of wine going through our place these days.

Nothing to get excited about yet – it’s more or less a shell. We are about half way and any further progress will be slow unless someone wants to throw a lazy couple of hungey grand our way (PM me for bank details).  We chip, chip, chip away at it one tradey at a time. And to bring in the bucks to get it finished, Andy continues to work away, which frankly is hard on the family and our relationship. But eye on the prize – when it’s built he can come home, get a lower paying local job and we’ll be a family together living in our glam country home.

We sent:

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Our girl off to kindy. With a 1st of March birthday, we had the dilemma of sending her this year, at 4 nearly 5, or waiting till next year when she’s 5 turning 6. I agonised about it right up to the day she started, and then for the first half of 1st term. She is fine, she loves it, is making friends and is loving learning to read and write. I will always wonder if she’d have been better off if we’d waited, and I suspect she would have been. But she’s fine, she’s happy.

We changed:

My work situation. By far the absolutely best thing that has happened in the last 12 months is quitting my job as a part-time financial planner. I’m not sure Andy agrees, but he’s supporting it bless him. We have one kid, one shot at it, and I wanted to do it completely. I wanted to be involved in her schooling, be there for her achievements, her school life. As it turns out, I haven’t completely quit the financial services world and continue to do some contract work, but it’s in my time and I’m not bound to an office, sitting in a job that my heart wasn’t in.

I’ve never been busier, with at least 2 hours of driving a day – a MASSIVE downside of rural life is the driving that’s involved with a young family. Everyday into town and back out and in and out again. Or hang in town and have to kill hours while you could be at home working, or getting the house clean, or cooking a great dinner for the family. Tippi is keen to get the bus, and we’re working towards that, but it’s complicated with a child with anaphylaxis and putting a 5 year old on a bus trip for over an hour carrying her own epipens is a tricky obstacle to overcome.

We lost:

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My mum. In the lead up to mothers day last year, I wrote about mum and her battle with ovarian cancer. She was doing so well with it it seemed. She’d endured more chemo, but still it hadn’t made her sick – she was definitely off, but not super sick like you see cancer victims in the movies. Maybe she was just being brave, but she was managing to live almost a normal life. She did hate the chemo though.

My sister brought her family out from the UK for Christmas, and we although we didn’t know it at the time, we had our last time all together. Mum was quieter than usual, with stomach and bowel issues dogging her a little, and a bit of vagueness she called “chemo brain”. By New Years Eve she was back in hospital with a bowel blockage. It was cleared for a while, but it came back and she was scheduled for bowel surgery in February to – in her mind – fix it once and for all.

But it wasn’t to be. The blockage became inoperable and untreatable, nothing more they could do. By then she had barely eaten for a few weeks, weight was falling off her. “Take her home” the doctors said, “keep her comfortable, give her whatever she wants.”

So we did. Mum never really grasped the fact that she was terminal, right up until the last week when she went into palliative care. My sister came out, leaving her young family in the UK for weeks, we all spent weeks going to and from Sydney to nurse her and be with her and Dad. And then, finally,just before Easter, we were doing the bedside vigil as we had been for a week. She was so weak, unable to speak or move. We sat with her all day, then at the end of the day, we kissed her, hugged her, told her goodbye, we love her, it’s ok to go. Her eyes indicated that she could hear us, and she loved us too.

My sisters and I left Dad alone with her and went home to Mum and Dads house where we’d all been staying together. Dad came home soon after. We were shattered. Then, within half an hour of Dad leaving the hospital, they called. She’s deteriorated, it’s very close. Did we want to go back?

We talked about it and decided no. We’d said goodbye. She’d held on all day, waiting for us to go. This is how she wanted it, she wanted to spare us from the moment. We sat together until the call came, and when it did we hugged each other close and wept.

At Christmas time when we were all together, we never dreamed we would be burying her by Easter.

Fucking cancer.

Escaping, The Build and The Kid

 

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Yesterday was overcast and rainy all day, then suddenly the sun popped out for a few minutes in the afternoon and threw out an amazing light, the whole place was literally luminous. In the country, there is always something interesting and beautiful happening in the sky.

Escaping

I think it’s essential that primary parents or care givers get some time out now and then, it makes them a better parent. I had my turn on the weekend when I drove solo to Sydney to have lunch at China Doll at the Woolloomooloo finger wharf with 2 girlfriends. We’ve been lunching together three times a year for over 20 years. Our lives are quite different, so it’s pretty much the only time we spend together, yet we know each other’s lives in detail including all our secrets. This time, we hadn’t caught up for over a year, and I don’t think we drew breathe for the 5 hours we were together. It was also heaven to eat Chinese – we tend not to with a peanut allergy child – and China Doll is bloody yum and the people watching is second to none as well.

I like my wine too much to then drive 2 hours home, so invited myself to stay at another girlfriends house for the night. Three of us – school friends from the 80s – drank more wine, devoured a cheese platter and shared the familiar banter that 30-something year old friendships allow.

The Build

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The slab is down – the first milestone reached. Apparently there’s a lull now while the steel gets fabricated, and we should have a frame in a few weeks.

Mum

Thinking about Mum a lot. She had her routine, post chemo blood test which showed an increase in cancer cells, dammit. Then a full body scan shows something sinister lurking in her spleen. She has no symptoms, so no treatment required just yet, but the doctors advised them to bring their trip to Europe forwards, as symptoms (and therefore more chemo) are probably only 2 months away. So next week they are off to England to see their 4 grandchildren, and my sister and BIL for 6 weeks, and all the time Mum has to try not to be thinking “shit, I’ve got cancer”, and not be terrified any time she gets a bit of indigestion.

The Kid

Speaking of Chinese, am nervous about 2 firsts happening this week with Tippi our 4 year old child with severe allergy to peanuts, and what was once a severe allergy to egg that now seems to be diminishing.

A couple of weeks ago, Tippi’s preschool teacher called me aside to tell me they were looking at Chinese culture, and wanted to take the kids to the local Chinese restaurant for lunch. For most people with a peanut allergy, Chinese is unthinkable. I would never consider it, and when the teacher raised it my heart started racing, and tears sprung to my eyes as I thought of Tippi’s devastation at missing out. She just loves eating out, we do it quite regularly and to eat out with her friends would be a dream. In that moment, I decided I would have to take the day off work and keep her home so that she was not left at the preschool when all her friends were playing grown ups at the restaurant.

As it turns out, the owner of the restaurant has a peanut allergy child, so I was willing to listen, and long story short have decided she can go, and I will go too. Tippi is so excited. Me? I’m shitting myself. This is FAR from comfortable. But various things I wont bore you with have lead me to allow it – I will be there with 4 epipens in my handbag, and my stomach in my mouth. I’m cross with the preschool – at which Tippi has been since she was 1 – for putting us in this position, however I do acknowledge that they are incredibly careful with allergies, there’s not been once incident in over 3 years and they wouldn’t do it if they weren’t completely comfortable. The preschool director goes to this restaurant with her nut allergy son.

On the upside – maybe we’ve found a safe Chinese restaurant, not something I ever thought I’d find, certainly not in the Southern Highlands.

And then, next weekend Andy and I are both leaving Tippi with my mum and dad for 2 nights as we go to the Yarra Valley for a weekend of frivolity with old, old friends most of whom I’ve known since we were kids. This is the first time in her 4 years she’ll be waking up without either of us, she’ll deal with that, although will no doubt kick up a little fuss.

It’s the food thing that worries me – Mum is careful but has made mistakes in the past (that have been caught just in time, so no disasters) and is pretty terrified of the epipen. We’ll be doing a full training session on epipen use for the 1034th time, and after that it’s up to Mum. Outings will be the hardest part – they cant stay home for 3 days, and Mum isn’t used to ordering for Tippi when out. Pack her food, mum, I will be requesting.

Anyhoo, I’m determined to go, trust, and have a wonderful time with my husband and lifelong friends whom I see only every few years these days. Kids are left with their grandparents all the time, Tippi adores hers and at the ripe old age of 4, she’ll cope. Wont she???

So I tentatively step in to this week of fearful firsts and tell myself that it will all be fine, and it’s worth it. Don’t make a liar of me please Universe

How do you go leaving your kids? Have you been able to escape lately?

 

 

 

 

 

 

That Moment When

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Last year late afternoon in June I was at my friends house bundling our 3 year old girls into my car. I was taking her Miss R to our place for a sleepover, my poor friend was heavily pregnant and having a shocker in and out of hospital.

My phone rang, and normally with two 3 year olds heading towards the end of the day I’d leave it, but a glance at the phone told me it was my mum, and I wanted to talk to her as I knew she was getting test results that day. Not that I was worried, I wasn’t. She’d had some persistent abdominal pain, more annoying than anything else. No loss of appetite, nothing to worry about.

“I have cancer.”

Jesus. Of the nasty kind? We didn’t know yet, more tests, urgent ones.

I’ll never forget that drive home, done in autopilot. The delightful Miss R chitty chatting from the back seat all the way home. “Lexy!” she’d yell if she sensed I wasn’t listening, “Lexy!”

I wasn’t listening (I’m sorry Miss R I wasn’t but I’ll make it up to you). The oceans were pounding in my head as I drove into the orange sun. My mum has cancer. My mum has cancer. My mum has cancer.

As a family, we’ve all been smug in our absence of cancer and heart disease. Rolling our eyes at our inevitable longevity as all the oldies got to their 90s before dying of…. well of old age.

So there we were. Yep serious, but treatable and surgery straight away please, oh and don’t go Googling it because it’s unhelpful and it’ll only tell you that peritoneal or ovarian cancer is known as the “silent killer”and knowing the survival rate is just not helpful. Unfortunately, by the time I agreed with that advice, I’d googled and googled and I’d seen.

My mum, my amazing beautiful mum has been extraordinary in this journey. So strong, so inspiring.

She went through 2 hell surgeries, damn near died with blood clots travelling through her heart, lost god knows how much weight. Chemo, hair loss, some weird foot injury requiring more surgery and delayed chemo, then more chemo.

In all that time, mum has stayed so positive, so strong. She refused to get sick, she got on with her life. Once she’d recovered from the awful awful surgeries, we almost forgot she was in chemo. She got on with it. She has chosen to believe the doctors who tell her things are looking good. She believes them, so I do too.

She just hates her lost hair. I think she’s looking like Judy Dench now it’s growing back.

Cancer – which I’d always sympathised with but never really considered as an issue for me – not only touched us, it grabbed us by the neck, picked us up till our feet were dangling and shook us into submission.

So this Mothers Day, which I usually acknowledge with a phone call if I remember, I am thinking about my mum. Not because I don’t think she’ll be here next year, I know she will. But for the extraordinary inspiration she is, for the wonderful, tireless mum, wife, sister and grandma she is.

And the friendship her and I have grown since I became an adult.

And so much more.

Mumma, I treasure you now and for the next 20 years you’ll be around and forever.

To those individuals and families who have been touched by cancer (‘touched’ being the polite word) I’m thinking of you too. With love xx